A Rare Disease. A Shared Task.

Every year on April 17, the world observes World Hemophilia Day — a date aimed at raising awareness about the issues faced by people living with blood clotting disorders. This day was established in honor of the birthday of Frank Schnabel, the founder of the World Federation of Hemophilia, and today it brings together patients, doctors, researchers, and everyone who cares about this issue.

Hemophilia is a rare inherited condition in which blood does not clot properly due to a deficiency of certain clotting factors. Even a minor injury can cause prolonged bleeding, and internal bleeding in joints and muscles can lead to pain, disability, and a reduced quality of life.

However, modern medicine offers effective ways to control the condition: prophylactic treatment, replacement therapy, individualized physical activity programs, and joint care.

According to specialists, several hundred people, including children, live with this condition in Kazakhstan. They require constant medical monitoring, preventive treatment, and careful attention in everyday life.

For Astana Medical University, comprehensive training of future specialists is important, enabling them to not only diagnose rare diseases but also care for patients with understanding and professional compassion.

We remind you: it all starts here — with a lecture, seminar, and the first clinical practice. The earlier students learn about the specifics of rare diseases, such as hemophilia, the more likely they are to change someone’s life for the better.